Education guide

What to track

Two weeks of simple notes often teach more than a single remembered bad day. Keep it light — patterns beat perfection.

  • Symptom intensity

    Once or twice daily, rate overall symptom burden from 0–10 and note the main symptom.

  • Triggers

    Briefly note environments or tasks that flared symptoms (stores, screens, heat, standing, travel).

  • Upright or active minutes

    Especially useful in POTS or fatigue patterns: how long you could be upright or active before needing rest.

  • Sleep

    Bedtime, wake time and whether sleep felt restorative — not a perfect diary, just a pattern check.

  • Medication changes

    Log starts/stops only as facts for your physicians; do not change medicines on your own.

  • Wins

    Record small functional gains (reading five more minutes, a calmer grocery trip). Progress is easy to miss without notes.

Privacy tip

Track on paper or a notes app you control. Do not email detailed health narratives to a waitlist form. Our waitlist asks only for contact and optional preferences — please keep symptoms for clinical conversations.

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